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The Heroes of Hope Grey Ribbon Crusade joins organizations and individuals as one united force against brain tumors. The group provides support for those affected by the disease and serves as a hub, allowing people to gather information and share resources, while providing a vehicle for fundraising.

The union offers a unique opportunity to place increased hope on the horizon, by gaining knowledge of, discussing and funding prospective research projects that may soon lead to a cure. Many of these projects require immediate funding. IF you are a researcher looking for funding for a brain tumor research project, go to our MEMBERS list and contact one member - and pitch your idea to them. IF they like it, they will ask you to fill out an application and then propose it to the group for you! There are no deadline. We accept applications year round, get our board to approve them quickly, THEN work together here to find funding for projects that interest us.

There are 532 members, 101 of which are non profit organizations
(Scroll Down For List By State)
Brain tumor organizations without non profit status = Individual or Organization with nonprofit status pending
Organizations with nonprofit status = Non-profit Organization

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Members: Non-profit Organizations

Mamfe, Cameroon The Enoh Nkongho Brain Foundation
I am a neurosyrgeon in training and a painter. I have been training in Israel for 3 and a half years and will move to Tanzania in July 2010 to continue the training. I wish to open up a neurosurgical center in my country after I finish my taining. This center will take care of patients, especially children with brain tumors. I wish to join your organization in the fight against brain tumors. Please, tell me how we can raise funds for this fight by selling some of my paintings. God bless
Thornhill, Ontario Canada Tali's Fund
Re last question: We are part of the SickKids Foundation (ie. we do not have charitable status on our own... donations go to our Fund at SickKids)
Leipzig, Germany German Brain Tumour Association
0049 341.590 93 96
Milan, Italy AITC - Associazione Italiana Tumori Cerebrali ONLUS
Uckfield, East Sussex UK Brain Tumour (BT) Buddies
05601 751226
I run BT Buddies which is dedicated to providing information and support to high grade brain tumour patients, their families, friends and caregivers living in the UK. I am not a registered charity but an avid believer that there is ALWAYS hope.
Cheadle Hulme, Cheshire United Kingdom Astro Fund
0161 221 1320
Astro Fund offers information, inspiration and hope to those living with a low-grade brain tumour
Englewood, CO United States Glenn Garcelon Foundation
The Glenn Garcelon Foundation, a 501(c)(3) was formed in 2010 to provide emotional and financial support to brain tumor patients and their caregivers. The Foundation honors the legacy of Glenn Garcelon, a 3 1/2 year survivor of an inoperable Glioblastoma Multiforme brain tumor. Glenn spend his entire life helping others, so it as only fitting that in death, we continue paying it forward. Since 2012 the Glenn Garcelon Foundation has raised over $93,000 to help those living with the devastating effects of brain tumors. Through an application process, we give grants throughout the United States to those in need of assistance. We currently hold fundraising events in Portland, Oregon; Denver, Colorado; and Dallas, Texas. Please find more information on our website.
Oneonta, Alabama Glenn Alan Miller Memorial Fund
I lost my soul mate and partner of 10 yrs to metastatic malignant tumors(Melanoma) of the brain. I have vowed not to let his death be in vain and we are working to establish the Glenn Alan Miller Memorial fund in hopes to provide scholarships to future students of research and science in the hopes of one day finding a cure.
Scottsdale, AZ Students Supporting Brain Tumor Research
Sedona, AZ Oligo Fund of Musella Foundation
Davis, CA Coalition for Children's Brain Tumor Research
Encino, CA Whole Child LA and Whole Child Foundation
Our Fed. Tax ID # 20-3381529
Granada Hills, CA We Can, Pediatric Brain Tumor Network
Napa, CA The Tug McGraw Foundation
San Diego, CA San Diego Brain Tumor Foundation
Mission Statement To support the Brain Tumor Community – patients and their families – by providing direct assistance with day-to-day social and medical needs. The Goal of the Foundation To be a local presence in San Diego, where we can make a difference in the brain tumor community supporting patients and their families.
Santa Monica, CA UCLA Department of Neurosurgery
(310) 825-5111
US Air Force Academy, CO Rachael's Ribbons of Hope Foundation
Rachael's Ribbons of Hope Foundation is founded by family and friends of Rachael Newton. Our Mission is to raise funds for brain tumor research and heighten public awareness of this devastating disease in the hopes of finding a cure.Rachael is my daughter and I feel blessed to have had a daughter like her, she is missed more everyday. I wish she was here to help us with this foundation but I know that she is in Heaven. My hopes are to help other children and parents so that they have more time with their families. No parent should lose their child!We are partnered with the Brain Tumor Institute at Children's National Medical Center in Washington D.C. where Rachael was treated.Rachael passed away March 8, 2007 at the age of 14, but her dream was to help others that are stricken by brain tumors and we are continuing that dream in her memory.We started this foundation in November 2007 and have received our 501.c.3 status as a public non profit organization.
Storrs, CT University of Connecticut
Thank you for your efforts. We urgently need to joint or consolidate all Brain Tumor organizations into a big, large, unified, one.
Washington, DC, District of Columbia Accelerate Brain Cancer Cure
Great concept - let's work together and find a cure! Our mission and focus at Accelerate Brain Cancer Cure (ABC2) is straightforward: to invest in research aimed at finding the fastest possible route to a cure. Our team at ABC2 understands that brain tumor and cancer patients are in desperate need of new, effective treatments. We take an aggressive, venture funding approach to drive the most innovative, next-generation research towards the fastest possible route to a cure. We provide researchers with the pivotal support they need to make critical scientific breakthroughs. We invest in the early stages of the therapeutic development pipeline in order to “buy down the risk” for our industry partners. We focus on supporting translational research in targeted therapies, drug delivery, cancer stem cells and using biomarkers for early detection and prognosis. We partner with leading medical research institutions, government agencies and biopharmaceutical companies to rapidly translate innovative ideas from the lab to the clinic setting for investigation and trial. ABC2’s accomplishments are measured by impact, leadership and leverage. We have awarded over $16 million in grants to world-renowned researchers from 42 institutions. About Our Founders: In 2001, Dan Case was diagnosed with brain cancer. Discouraged by a lack of information and limited treatment options, Dan, together with his brother, Steve Case, and their families, founded Accelerate Brain Cancer Cure.
Clearwater, Fl Miles For Hope
"Moving Towards A Cure" - Miles for Hope was established by Bob & Barb Gibbs to raise funds for promising brain tumor clinical trials and research.  We are dedicated to raising funds to improve current treatments for brain tumors, and to assist brain tumor patients with travel expenses for their treatment.  Our goal at Miles for Hope is to provide a complete source for cutting edge treatment and support for both the patient and care givers.  There are many wonderful sources of information on the internet for brain tumors, and our goal is to compile these resources at one location.  Here you will find a large support forum full of information, the most current clinical trial information, breaking news regarding brain tumors, and other support and awareness tools for your use in combating and fighting brain tumors. Our goal is to have our forums monitored and frequented by some of the leading professionals in the brain tumor community.  These will include neuro-surgeons, neuro-oncologists and neuro-psychologists.  Please support us in our efforts.  Help us support those who are affected by brain tumors, and fund current research leading to a cure for this disease. 
Coral Springs, FL Florida Brain Tumor Association
         OUR MISSION To provide hope,support and education to brain tumor survivors and their families To conquer brain tumors by funding research into their causes and cures To enrich the quality of life of those touched by brain tumors          The FBTA has become a major force in the brain tumor community. We have hosted many 3 days conferences,seminars & meetings, attracting thousands of           survivors, families & friends & health care professionals in the US & Canada. We are proud to have the most renown presenters in the brain tumor community           travel to FBTA conferences from across the country. The next FBTA conference is Jan. 23-25,2009, West Palm Beach FL, Marriott Hotel-More info:
Ponte Vedra Beach, FL Nicki Leach Foundation
Viera, FL Just One More Day for Love, Hope & a Cure
Just One More Dayis committed to increasing awareness about diffuse intrinsic pontine gliomas, funding research, and providing information for the families of children who are living with this type of cancer.
Canton, Ga Bend Your Knees, Inc.
The Bend Your Knees Foundation is a Georgia 501(c) 3 non-profit started in memory of Collins Dixon to raise money to be able to give back to others. Our focus is to spread awareness of Brain tumors in children, support families with a child that has a brain tumor and support other organization that work with children with brain tumors such as the Brain Tumor Foundation for Children. Collins was called home to be with God January 14th, 2012. We are praising Jesus and so thankful that Collins passing was peaceful. Collins is now fully healed and restored. If we could see just a momentary glimpse of the amazing splendor and Glory of Heaven right now, we would be able to see Collins fully healed BY HIS STRIPES and the celebration that is happening right now is beyond anything we have ever seen or witnessed on earth. The lives that Collins has impacted and witnessed to and the dedications of souls for eternal salvation- total numbers of lives forever given to Jesus Christ is something we will never know…until the day that we are each called home…but we know that number is many and fully believing that by forever sharing Collins story and testimony of his UNWAVERING faith will continue to change lives…
Douglasville, GA The Charles Warren Brain Tumor Awareness Foundation, Inc.
Thank you so much for contacting us concerning the UFAB.  As I have tried to figure a way to increase the awareness of brain tumors, I have often considered that the only way we will ever be truly successful is if we could somehow combine forces with these large, super organized groups.  Now we can and I am very excited!  Please let me know how we can be involved.  We will place a link  to your organization on our website as well as a note about the movement. 
Des Moines, IA The Michael Overall Benefit Fund
Chicago, IL Imerman Angels
Imerman Angels is an organization providing one-on-one cancer support: connecting cancer fighters, survivors and caregivers. Imerman Angels partners a person fighting cancer with someone who has beaten the same type of cancer. One-on-one relationships give a fighter the chance to ask personal questions and get support from someone who is uniquely familiar with their experience. The service is absolutely free and helps anyone touched by any type of cancer, at any cancer stage level, at any age, living anywhere in the world.
Chicago, IL Michael Matters Foundation
Des Plaines, Il LAAF - Lori Arquilla Andersen Foundation
904-334-0124 / 847-561-1199
Visit: and LAAF was founded in memory of Lori Arquilla Andersen by her mother, Linda Magiera IL, and her sister, Lisa Dodge FL; to fulfill her wishes of making a difference in the lives of other brain cancer patients. We are a 501c3 not for profit public charity and donations made are tax deductible. Lori Arquilla Andersen, a Chicago area native, was diagnosed in 2003 with the worst type of brain cancer (GBM grade IV) just 3 months after her marriage. She fought a courageous 22 month battle and was able to remain positive until the very end. She lost her battle on 7-5-05 at the young age of 35. Even on Lori's toughest days, her smile and laughter would shine through and inspire those around her. We continue Lori's journey in hopes of finding a cure. Read about Lori's journey with brain cancer: Get to know Lori by viewing the video: live, love, laaf! at ; and please pass it along to everyone you know. The Lori Arquilla Andersen Foundation for Brain Cancer Awareness is promoting awareness of the life threatening effects of brain tumors, advocating on behalf of brain cancer patients and raising funds for medical research. LAAF is dedicated to making a difference towards finding a cure. ** PLEASE contact us if you are able to have a fundraiser in your town for LAAF. Proceeds will benefit LAAF awareness and patient programs, advocacy efforts and the Brain Tumor Research Fund at Northwestern University. We are currently working on a pilot program to offer financial aid to brain tumor patients and their families to help with the cost of treatments, living expenses, the high out of pocket expenses, etc... When this program is fully funded we will be able to implement it into the community. LAAF works closely with Dr. Jeffrey Raizer, Director of Medical Neuro-Oncology at the Northwestern University Feinberg School of Medicine; he is the administrator of the BRAIN TUMOR RESEARCH FUND. In May 2008, they are launching the Brain Tumor Institute. For the past 2 years LAAF has been working closely with Congress and was instrumental in introducing a resolution to make the month of MAY: National Brain Tumor Awareness Month. LAAF was also invited to speak at a Congressional briefing on that resolution in May 2008 in Washington D.C. Thanks to the collaboration between LAAF and Congresswomen Schakowsky the resolution has finally been passed! We now have the awareness we were so desperately seeking for the brain tumor community. Please see the Congresswoman's speech on CSPAN. go to - Thanks for your support!
Lake Forest, IL Benny's World
Lake in the Hills, IL Ryan Lamantia Foundation
West Chicago, IL PA/PMA Research Fund at Johns Hopkins
Myself and Joan Kerpan were the co-founders of the PA/PMA fund which is for research on pilocytic and pilomyxoid astrocytomas. Dr. Peter Burger and Dr. Charles Eberhardt, PhD are heading up the team at JH. $180,000.00 was raised initially, and research has been ongoing for 2-3 years now. We are very pleased also that the Who (World Health Organization) has now identified the rarer strain of pilomyxoid astrocytoma as it's own entity. Before this, PMA's were viewed and treated just like you would a pilocytic or JPA. We are very pleased.Patricia DeJong
Benton, Kentucky Gunner's Magic Train Pediatric Cancer Foundation
Gunner, my 8 year old son passed away October 23, 2008 from a brain tumor (DIPG). I want to make a difference with his organization so I am proud to unite and fight!
Overland Park, KS Epidermoid Brain Tumor Society
Epidermoid Brain Tumor Society™ is an international support group for the rare epidermoid brain tumor located in a challenging location in the skull base. We are new on the block since late 2012 and have applied for 50l c (3) non-profit determination. Our members are provided support and resources from our members's own experience. There is no research and very little knowledge is given at diagnosis. The patient is sent home with despair and feels very much alone. They have a need to find someone else affected by this brain tumor to learn more about this tumor and what resources are available. We need your help to fund our ongoing expenses such as server and immediate costs associated with our support organization. With your donation, you are providing needed support for the epidermoid brain tumor patient. We are proud to join members of Heroes of Hope Grey Ribbon Crusade. Your Grey Ribbon Crusade is an excellent fit for us because you see our members ARE heroes.
Newton, MA National Brain Tumor Society
617 924 9997
Baltimore, MD Keep Punching
Germantown, MD Childhood Brain Tumor Foundation
Gladstone, MI Michigan State University
906 280-1416
Holland, MI Unlocking Brain Tumors, Inc
(616) 335-9050 was launched in September 2007 by Stephen Coffman, a former business leader who left the human resources marketplace after being diagnosed with cancer and was subsequently diagnosed with a brain tumor. Money raised by is directed toward novel brain tumor research, exciting novel treatment targets and improved treatment choices; all funds raised are allocated in streamlined fashion, using existing channels and foundations with the goal of distributing money quickly and fairly, to those who can operationalize it quickly, and who limit their overhead to make more money available for research and treatment. is a registered 501(c)3 public charity, and to date the organization has directly raised or assisted in the raising of over $100,000 to be dedicated toward brain tumor research. We are committed to giving at least 90% (or 100% as directed) of donated funds .
Jackson, Mi Another Day Another Memory (A.D.A.M.)
We started a grief support organization for parents that have lost a child and a sibling that have lost a loved one. We did this in memory of our son, Adam who had dipg.
Kansas City, MI Head for the Cure Foundation
Midland, MI Walk For Kate
Rochester, MN Brains Together For a Cure
Our Mission: To promote awareness of brain tumors and the need for effective treatments.
Carrboro, NC UNC Chapel Hill
Charlotte, NC Brain Tumor Fund for the Carolinas
Raleigh Durham, NC Preston Robert Tisch Brain Tumor Center
Omaha, NE Leap-for-a-Cure
Locally, Leap-for-a-Cure promotes Brain Cancer Awareness in Omaha, NE. Nationally, LFAC wants to support efforts for more funding and research so that futures are bright, families have hope, and patients are cured. LFAC also promotes wearing gray for awarenss and hope. No one should hear the words "brain cancer" and feel there is little to no hope.
Martinsville, NJ New Jersey Brain Tumor Support Group
Cream Ridge, NJ Gray Matters Brain Cancer Foundation
Oceanport, NJ The Kortney Rose Foundation
I believe that in the long run if all of us band together where legislation is concerned we will make a larger impact. This is great! Please keep your grey ribbon as I already have one and would rather have you give one to someone who doesn't. Thanks, Kristen Gillette
Robbinsville, NJ Thea's Star of Hope
Mission To focus on the quality of life for children suffering from brain tumors, by improving treatments, primarily for Pediatric Low Grade Gliomas. Vision To support endeavors to research better treatment options for children with brain tumors, focusing on Pediatric Low Grade Gliomas. To raise awareness of pediatric brain tumors and the long term effects of the diseases, as well as treatments. To help improve the quality of life of families of children in treatment for pediatric brain tumors.
Roseland, NJ Peter A Bednarski Fund for Brain Tumor Research Inc
Swedesboro, NJ Matthew's Miles
Buffalo, NY Roswell Park Cancer Institute
Chappaqua, NY A Kids' Brain Tumor Cure
The mission of A Kids’ Brain Tumor Cure is three-fold: To accelerate the pace of promising scientific research for the most common forms of pediatric brain cancer by acting as a catalyst for individuals and corporations to initiate fundraising projects that will benefit targeted research studies. To identify a clear scientific research agenda for pediatric brain cancer and create opportunities for talented researchers and clinicians to apply for grant funding for startup as well as follow through project monies. To act as a central resource and a portal for information for parents, patients, families, clinicians, researchers, specialists, and other non-profit institutions seeking information about the most common forms of pediatric brain tumors.
Hewlett, NY Musella Foundation For Brain Tumor Research & Information, Inc
The Musella Foundation raises funds for research and provides education and support to families dealing with all types of brain tumors: Adult / Pediatric, common and rare, Malignant and benign as well as metastatic. We are a 501(c)(3) nonprofit public charity and willing to work with anyone to help speed up the search for the cure!
We run many online support groups - including the Braintumor-Treatments online support group - over 2,000 families dealing with brain tumors discuss dealing with the disease!
New York, NY Children's Brain Tumor Foundation
New York, NY Cristian Rivera Foundation
New York, NY Kamen Brain Tumor Foundation
New York, NY Voices Against Brain Cancer
516 633 0800
Warwick, ny Michael A. DiCarlo Brain Tumor Foundation
website and logo are being developed. We are a Charitable Foundation through Fidelity Charitable Giving Program.
Avon Lake, OH Smiles For Sophie Forever
440 930-5091
In February of 2007 Sophie Elizabeth Quayle, at age three, was diagnosed with a diffuse intrinsic pontine glioma (DIPG) - a cancerous brain tumor. This type of tumor is located in the brainstem, at the base of the brain. Affecting primarily children, it is the rarest and worst of pediatric brain tumors. Approximately 150 to 200 children are diagnosed each year. This type of tumor is considered terminal, and survival time is typically nine to twelve months following diagnosis. Sophie's parents, Marc and Emily Quayle of Avon Lake, felt an overwhelming sense of helplessness when learning there was nothing the doctors could do to save Sophie's precious life. Sophie passed away October 6, 2007, just seven and a half months after diagnosis. This great despair and frustration lead Marc and Emily on a mission to help children and families suffering from DIPG, while raising awareness and money that will lead to a cure for this awful disease and other types of pediatric brain cancer. Our Mission: The mission of Smiles For Sophie Forever* - A Foundation Confronting Pediatric Brain Cancer is threefold: - to provide financial and emotional support to families burdened by pediatric brain tumors - to promote a global awareness of not only pediatric brain tumors, but also an awareness of the lack of funding allocated for pediatric brain cancer research; and - to provide financial support to St. Jude, where Sophie was treated, and to other viable organizations committed to the treatment and cure of pediatric brain cancer. * Smiles For Sophie Forever is a tax-exempt, 501 (c)(3) organization.
Boardman, OH Tommy Detesco Fund for Adolescents and Young Adults
The Tommy Detesco Fund is meant to address those individuals living with brain tumors during adolescence and young adulthood. Tommy was my brother, and he lived with brain tumors from his first surgery at age six until his death 8/31/2007 at the age of thirty-two. His story is inspirational and gives others hope to never give up for a cure!
Cincinnati, OH Cure Starts Now
The Cure Starts Now Foundation is an IRS 501C non-profit charity dedicated to educating, aiding and funding the search for a cure for brainstem glioma and other forms of pediatric brain cancer in the hopes of curing all cancers. Our fight begins with the children, typically ages 5-7, who are most commonly afflicted with this debilitating disease. Their prognosis is considered "dismal" by cancer experts with less than 1-10% of all confirmed victims living beyond 18 months from diagnosis. Sparing their cognitive abilities, brainstem glioma slowly robs children of their motor functions resulting in partial paralysis, loss of voice and sight and finally ending with an inability to eat and breath. It is both heart wrenching and painful as they are fully aware of their decline often until their last day. The cure starts now...
Columbus, OH Ohio State University Medical Center
Lancaster, OH Kevin Mullin Memorial Fund for Brain Tumor Research
We started Kevin's Fund just 6 months after he lost his battle with a malignant brain tumor. Kevin was a cross country runner in high school and his team would participate in the Race for the cure. After he was diagnosed with the brain tumor he still wanted to do the race for the cure. He could no longer run or see very well but in May of 2001he and his mom walked the 5K and Kevin commented that he wished all the people participating that day were doing it for brain tumor research. When he lost his battle in August of 2001 his family vowed to make his wish come true and the first Kevin Mullin Memorial 5K run/walk took place in April of 2002 and $20,000 + was raised that day. Thus far after 9 events we have raised almost $200,000 for brain tumor research and awareness. Kevin had so much hope that a cure would be found and our family will continue this fight until that hope becomes a reality.
London, OH Rockin' on the Run
Ashley Winebrenner, Johnda Beathard and Carol Semler founded Rockin’ on the Run in 2010. They created this organization to raise awareness of pediatric brain tumors. Carol’s daughter, Reagyn, was diagnosed with a brain tumor in 2005. In 2011, Robin Baier and Dode McVey became very involved in planning the event because of their children’s diagnoses of brain tumors. Sadly, both of their children passed away because of their brain tumors in 2010. Rockin’ on the Run holds one major community event a year. This is a 5K walk/run and family day. Every year it is the 3rd Saturday in May. This year’s event, which is scheduled for May 18, 2013, is the 4th year for the event. To date we have donated more than $22,000 to fight brain tumor cancer. Rockin’ on the Run has achieved so much in such a short amount of time and it’s all because of the communities’ involvement. Our goals are simple: 1) Raise more funds for research & awareness of brain tumors. 2) Increase public awareness about the prevalence of brain tumors. 3) Provide resources to all afflicted by brain tumors. WE WILL ACCOMPLISH OUR GOALS - BUT WE NEED OUR COMMUNITY TO HELP US! They no longer have a voice, but we do.... For more information on how you can start helping to make a difference please visit
Parma, OH Michael G. Belz Foundation
Thank you so much for this opportunity!!
South Euclid, OH Mission4Maureen
440- 840-6497
"No one can do everything, but everyone can do something." When the announcement was made that Senator Edward Kennedy had brain cancer it seemed that the whole world paid attention.  Every news agency and newspaper led with that headline and stories flooded the internet.  As a result, the Mission4Maureen website received over 26,000 hits over the past 4 months.  Many letters of inquiry have been received and of course the stories are both sad and familiar.  Most letters were followed by applications for assistance.  Mission4Maureen intends to assist all who qualify but we need help.  Currently there are 18 applicants and while not all patients agree to make their stories public, they share one identical message.  They are grateful that there is a charity like Mission4Maureen to whom they can turn for help.  In order to help all these patients, Mission4Maureen needs to raise $32,000.   Kennedy's brain cancer brought needed light to the plight of brain cancer patients.  Please help us to help them. Donation checks made out to Mission4Maureen may be sent to PO Box 21602, South Euclid, OH 44121. Our current fundraiser is 2008 - 2009 Annual Fund.  See our website at Mission4Maureen for details.
West Chester, OH Lifestream for Kids
Oklahoma City, OK Oklahoma Brain Tumor Foundation
Ambler, PA Wylie's Day Foundation
Wylie's Day Foundation was created in 2005. Wylie Strotbeck was 11 years old when diagnosed with a medulloblastoma. He was optimistic and the bravest hero we ever knew. His wish was to be normal and someday have a family. His battle ended 16 mos. after diagnosis. There were no available treatments left after having tried everything the best institutions and the best docs had to offer. Our mission is to fund cutting edge research towards a cure for pediatric brain tumors. No child should have to suffer this devastating disease and most difficult journey. We strive for the DAY that a cure can be found. We also fund child life oncology programs.
Butler, PA Denise's People
This year will be our 4th year for organizing a walk to end brain tumors.
Easton, PA Lauren's First and Goal Foundation
Lauren's First and Goal is a charitable organization created to raise funds to support pediatric brain tumor research, support local pediatric cancer services, provide financial assistance to families living with a pediatric cancer diagnosis and to raise public awareness regarding pediatric brain tumors. The fund is supported primarily by Lauren's First and Goal Football Camp, a non-contact, one day instructional clinic taught by experienced Division I, II and III college coaches. In addition to the original camp hosted by Lafayette College in Easton, PA, the foundation branched out to The University of South Florida in 2008 to run Lauren's First and Goal South. The PA camp drew over 1600 players from across the northeastern states. Over 300 players attended the inaugural event in Tampa. In all, over 300 college coaches volunteered their time and helped raise over $255,000 for Lauren's First and Goal Foundation. Since the Foundation's inception five years ago, over 5,300 high school players have attended the camp and over half a million dollars has been raised to support research towards a cure for pediatric brain tumors. The camp and organization are named in honor of Lauren Loose, an eleven year old brain tumor survivor, who has been living with a diagnosis of multiple brain and spinal cord tumors, Neurofibromatosis and Evan's Syndrome since 9 months of age. Her courage, relentless spirit and joy for life are an inspiration to those who know her. It is our hope that through Lauren's example, we can help to improve the lives of other children and families dealing with pediatric cancer.The Foundation has 501c3 tax exempt status approval from the IRS, which allows for tax deductible contributions to Lauren's First and Goal.
Lafayette Hill, PA Kyle Daniel Kerpan Foundation
The Kyle Daniel Kerpan Foundation is named for, and has been formed in memory of our son, Kyle. Kyle battled brain tumors and related disease symptoms from diagnosis at age two until he lost his battle and passed away at the age of 11. During the time after his diagnosis, my husband, myself and Kyle’s twin sister Tessa fought that battle along with him. What we learned from personal experience in working with Kyle and other patients, families and friends of patients and the medical community shapes this Foundation and the activities that will be its focus. Our goal is to take what we have learned and, working with others, use this knowledge and experience to enrich and enhance the quality of life of other pediatric brain tumor patients and their families. It is dedicated to a very brave little boy that so loved his life and fought so hard to keep it…
Oakdale, PA Samuel J Foundation
the Samuel J Foundation was founded in memory of Samuel Jacob Johnson who died from a brain tumor in November 2003 at age 3. The Foundation’s mission is to give children with brain tumors hope for a cure, bring smiles into the lives of children with all types of pediatric cancers and their families, and support the needs of children with developmental disabilities. The Foundation’s current programs include a pediatric brain tumor fund that has been used to support brain tumor research at Children’s Hospital of Pittsburgh, as well as a snack cart for parents and children on the inpatient oncology unit at Children’s Hospital of Pittsburgh. The Foundation has also sponsored two wishes for children with brain tumors through the Make A Wish Foundation, and has made donations to The Early Learning Institute of Pittsburgh to support the needs of young children with developmental disabilities.
Philadelphia, PA University of Pennsylvania Department of Neurosurgery
Pittsburgh, PA Allegheny Brain Tumor Center
richboro, PA
267 9399742
We are in the works of a 501c3 non-profit paperwork.
Scranton, PA Aimee's Army
May be interested in co-funding future research projects.
Upland , PA Crozer-Chester Foundation
Providence, RI Rhode Island Brain & Spine Tumor Foundation
The Rhode Island Brain & Spine Tumor Foundation is committed to increasing awareness in our state about brain and spine tumors, to assisting patients, their loved ones and caregivers with information and support, and to developing more resources for patient care and research. Please feel free to contact us whether your life has been affected by a brain or spine tumor or you would like to join our cause.
Marietta, SC The Brain Tumor Awareness Organization
We are excited to be apart of this movement. Together we can make an impact! We are engaged in raising awareness in South Carolina, providing a single source web site of information and support so that everyone that is affected by this disease will find or contribute to the support in their communities.
Dyersburg, Tennessee Brain Tumor Group Of Tennessee
Kyle, Texas Greg's Mission
Greg's Mission provides FREE 1 on 1 brain tumor support from a 12+ year GBM brain tumor survivor.
Carrollton, TX The Nick Gonzales Foundation for Brain Tumor Research
The Nick Gonzales Foundation for Brain Tumor Research funds an annual research grant through the National Brain Tumor Foundation,   The 2008 Nick Gonzales Research Grant of $50,000 was awarded to M.D. Anderson Cancer Center on June 20, 2008.   Please visit our website for upcoming fundraising events and the 2nd Annual Nick Gonzales Charity Golf Tournament scheduled for May 8, 2009 in Flower Mound, TX (just north of DFW Airport). 
Dallas, TX Team Underwood Foundation
This is a great idea to get all the brain tumor awareness groups and fund raising groups together!! Thanks!!
Houston, TX Dr. Marnie Rose Foundation
Marnie was a bright, beautiful, vivacious second-year pediatric resident when she died in 2002 of a glioblastoma. She appeared on the nationally acclaimed ABC television series Houston Medical to put a human face to brain cancer and to give strength to others who were ill. During Marnie's illness, we were appalled by the limited funding for brain tumor research and the lack of awareness of its incidence, especially among young adults. We started the Dr. Marnie Rose Foundation after her death to address these issues and to remember the children Marnie so adored. Our annual Run for the Rose and Ridin' for the Rose, a motorcycle rally, have netted over $1,100,000.00. At M. D. Anderson Cancer Center, we have funded cutting-edge immunotherapy research and have watched it extend the lives of patients. We are so thrilled when these same patients participate in our Run and Ride. We also fund new drug development and the growing field of personalized medicine, with the goal of rapid translation to clinical trials. This research is especially important because these treatments stand to benefit all cancer patients. At Children's Memorial Hermann Hospital, where Marnie was a resident, funds are designated for the development of the Pediatric Neuroscience Center, which treats children with brain tumors. Please join us for the 7th Annual Run for the Rose on Sunday, March 29, 2009. Check out our web site,, forthe dates of the Ride and our new Rose Pedal, a bicycle ride for families. Our events bring together patients and families for support and camaraderie and empowerment.
Houston, TX The Brain Tumor Trials Collaborative (BTTC)
Our Mission The mission of the BTTC is to develop and perform hypothesis-based, state-of-the-art clinical trials in a collaborative and collegial environment emphasizing innovation and meticulous attention to protocol compliance and data quality. Through these efforts, the BTTC will strive to advance treatments for patients with neuro-oncologic illness with recognition of the importance of merging good scientific method with concern for patient well-being and outcome.
Porter, TX Children's Brain Tumor Research Foundation
Children’s BrainTumor Research Foundation is a 501(c)3 nonprofit organization dedicated to the education, research,and awareness surrounding rare types of childhood brain tumors.CBTRF provides a forum for families of children with cancer to learn more about these rare types of tumors, and promotes open dialogue between parents, doctors, and researchers worldwide in an effort to find a cure. In addition, we seek to identify and fund novel treatments for childhood brain tumors.
Ashburn, VA The Brad Kaminsky Foundation for Brain Tumor Research
The Brad Kaminsky Foundation is dedicated to Raising Awareness of Brain Tumors and Funds for Research so that Effective Treatments and Ultimately, A CURE, may be found. We are also dedicated to providing support and resources to those affected by this horrible disease, and will work with other organizations for the betterment of all patients and families so as to bring about a cure as quickly as possible.
Ashland, VA Brown Bag For A Cure
(804) 296-4590
Brown Bag For A Cure a simple, unique that supports pediatric brain tumor research...Brown Bag your lunch and donate what you would have spent on lunch out. Our 501 (c) (3) status is pending.
Crozet, VA Lou Beeler Foundation
Glen Allen, VA Brain Tumor Resource And Information Network
1-800-900-6195 code 48
HI Everyone: Glad to become a member. We do have a logo, but had difficulty putting it on your browser. Please let me know how to do this. We established our all volunteer non-profit charity in 2005 to improve the quality of life of brain tumor patients, increase public awareness, and raise funds to aid in the research to eliminate the disease. We provide information packages to newly diagnosed patients and have given out more than 500 in the Richmond, VA area to date. I was diagnosed in May of 2003 with an Oligo-Astocytoma, Grade 2. I go to the Preston Robert Tisch Brain Tumor Center for Treatment. I am a member of the Society of Neuro-oncology and attend all annual and world conferences. We are members of the International Brain Tumor Alliance, a fantastic organization. See www.theibta. Collectively, I know we can raise enough money to find a cure. With love, prayers, and Hope, Marguerite Sciuk President/Founder/Brain Tumor Survivor
Vienna, VA The Brian Bedell 2-Young Foundation
Quite simply, our mission is to help find a cure for brain cancer. The Brian Bedell 2-Young Foundation will be a positive force for other patients dealing with a brain tumor diagnosis and strive to help the patient and their families deal with this formidable opponent. We will increase public awareness of brain cancer and will help to raise crucial funds needed to find effective treatments and one day a cure for brain cancer.
Rutland, VT Gayle SHeldon Memorial Foundation for Brain Cancer, Inc.
Maple Valley, WA The Chris Elliott Fund
253 266 0009
Ballengee, WV Raleigh General Hospital
Casper, WY Brain Injury Association of Wyoming
We provide local support groups, a lending library, newsletters, and other services to people living in Wyoming with the effects of brain injury.


Members: Individuals

Salt Lake City, UT Sarah Griffin
london , nonn AFRICA Sherri Cooper
london , nonn AFRICA Cathryn Joseph
london , nonn AFRICA Socorro Robertson
london , nonn AFRICA Alison Carey
london , nonn AFRICA Cathryn Castro
london , nonn AFRICA Meredith Deleon
london , nonn AFRICA Lesley Harrington
london , nonn AFRICA Muriel Kelley
london , nonn AFRICA Jody Noel
london , nonn AFRICA Doreen Ochoa
london , nonn AFRICA Wanda Parks
london , nonn AFRICA Justine Price
london , nonn AFRICA Melissa Rowland
london , nonn AFRICA Amelia Shepherd
Mount barker , Australia Danielle Luck
north ringwood, Melbourne Victoria australia janet micallef
When we have our website done that would be great!!!
Oxenford, Queensland Australia Alfia Dance
I would like recieve the dail news about brian turmer .
Chilliwack, BC Canada Kathleen De Graw
Nelson, BC Canada Megan Moore
Toronto, Ontario Canada Larry Ellerton
Salem, Tamilnadu India Saroja gayathri
jst pray 4 dse real lyf fighters ..................!!!
Clonakilty, Co. Cork Ireland Sean Allis
dublin, ireland ireland patricia mccolgan
i'm Rory's mom (dx sPNET bt in April 08 and doing well).
Lucena City, Philippines Rolynda Agnes de los Angeles
mankayan/baguio, benguet philippines benjie bayanes
Lisboa, Portugal Joana Tavares
Dublin, Republic of Ireland Naomi Roche
Solna, Sweden Cecilia Broddling
Leeds, UK Cathi Core
I'm a 9 year astrocytoma grade 2 right frontal tumour survivor - life has changed but I live it to the full!
Worcester, UK Rosie Shearburn
I am a proud survivor of a 8.5 hour operation to (mostly) remove a trigeminal schwannoma of 3.6cm diameter on 22nd August 09, in Birmingham, UK. I am sure that the fact that I am relatively unscathed and that I am doing so well is due to the extreme skill of the neurosurgeon. The stories on this website are so inspirational.
Perth, Perth& Kinross UK Alan Main
bellaire, OH United States angelique parker
Washington, Utah United States sherry shirts
Arlington, VA United States Emre Ilter
Haymarket,, VA United States Sheryl Winkler
Burlington, VT United States Kristin Albee
, Heide Randall
I think this is wonderful. Thank you so much for doing this, and I wish you all the best!!! I have been brainstorming about brain tumor-specific fundraisers, and you will be one of the FIRST I notify when I come up with one, and decide what I'm doing! :)
Jeffersonville, Dana DiCaprio
North Kingstown, Leslie Gunther
Simi Valley, Eleni Miller
Woburn, Anna Demers
I am a 8 survivor
Eau Claire, wi Rachel Meyers
Juneau, AK Kay Diebels
Enterprise, AL Adrienne Wilk
100% of our race proceeds go to the National Brain Tumor Society
Grove Hill, AL Sharon Harrell
My husband lost his fight against a brain tumor in March 2008.
Lacey's Spring, AL Candra Morris
We have a dear friend who wsa diagnosed with a brain tumor and when they removed it it was a grade 3, so our bike group is doing a benefit for her and we want to raise all the awareness we can for this cause
Loxley, AL Mary Wallace
Madison, AL James Lipski
I Could Be Your Child has been organized to increase awareness of pediatric brain tumors (primarily dipg), provide funding for research and to provide support to children and families diagnosed with a pediatric brain tumor. I Could Be Your Child is a tax-exempt, 501(c)(3) organization.
madison, al. allyce schneider
Goshen, Alabama Rhonda Miley
lost my daddy this year to a glioma
Montgomery, Alabama Jennifer Murphy
Oneonta, Alabama Glenn Miller
Benton, AR Theresa Marley
Bentonville, AR Julie Witte, J.D.
Greenwood, AR Krista Elmore
Hot Springs, AR Nicole Crowe
scottsdale, arizona talisa carter
Chandler, AZ Karen Kuzmovich
Gilbert, AZ Jackie Pilla, M.Ed.
I am a brain tumor survivor and had successful surgery to remove a meningioma in November 2007! I have been volunteering for a nonprofit bt organization and will forward this information to them to ensure they know about it.
Goodyear, AZ Patty Petersen
Laveen, AZ Mike Sinclair
I'm a recently retired health physicist diagnosed with astrocytoma and being treated with chemo at Barrow Neuro Institute at St. Joseph's Medical Center in Phoenix.
Denver , C) Cindi Rixey Scott
Keep on getting louder.
Anaheim, CA Chrisitne Cortez
Apple Valley, CA Renee Segura
My father was recently diagnosed with Glioblastoma Multiforme. Had surgery 2 weeks ago, waiting to start radiation treatment. His loving family us supporting him through this unknown journey. My father fought a tremendous battle and never gave up, my father, my hero became our Angel in heaven on June 16, 2011 after fighting for 3 months. I will participate and donate in as much as I can to help find a cure fro this terible disease.
Boulder Creek , CA rex scates
I have a oliodendroglioma right frontal lobe.. Diagnosed Nov-1 2007, Did not do surgery just a biopsy. On temodar and MRI's are looking better each time.Some behavioral changes.
Cerritos, CA Merry Arrogante
Chula Vista, CA Joevert Gangoso
Corona, CA Denise Rager
We are a new charity. We have applied for 501C3 status, still waiting on the government. We are incorporated as a non profit in the state of California. I will update as soon as we get official status.
Folsom, CA Pam Quillin
Brain tumor survivor (oligodendroglioma) since 1993; 3 craniotomies, 6 weeks radiation, 1 year chemo, enough MRI's to stick to a refrigerator. Still kicking
Galt, CA Gina Winchell
My son has a Oligodendroglioma brain tumor. He is 33 and has had surgery and radiation, however, the doctors were not able to get all of the growth. I am interested in becoming involved in the area.
Gilroy, CA Gloria MacVicar
LA, CA Laura Baker
Los Angeles, CA Bryan Prado
On January 9, 2007 I survived a 14 hour surgery for a benign trigeminal schwannoma. They said I had it close to 10-15 years and it was the size of a golf ball. Albeit, my experience may not be as fatal as others but I was deathly afraid of the outcome. But I had some great doctors at UCLA Medical who had the most amazing bed side manner and took the utmost care when providing me with the help I needed. I am thankful to them and want to see Heroes of Hope succeed in their endeavors. I look forward this years 2nd Annual Race for Research which I plan on making an annual mecca event for myself.
Lynwood, Ca Allison Andrade
Lynwood, Ca Wendy Andrade
I lost my love & soulmate on April 15,2011 to Anaplastic Hemangiopericytoma. A rare brain cancer that started off as brain tumors and then spread quickly to his body. It is so rare that you can't find very much information on it and even the specialists treating him didn't know much about it. We were only married a little over a year and a half and we have an 8 month old baby girl. He had a love of life & a wonderful way of always making people laugh that will always be with me. He was my everything and continues to be my inspiration. We must unite to find a cure so that noone else has to see their loved one suffer as I had to. He didn't deserve it. Noone does. We must find a cure for brain tumors and brain cancer. R.I.P my love, you've earned your angel wings. Thank you for your love, for our memories & for our baby girl. I will always love you.
Moreno Valley, CA Elizabeth Jacobson
Placerville, CA Tanya Perez
Placerville, CA Angie Green
Online advocate for Cancer research, my blog tells the stories of Cancer sufferers who need the internet to raise awareness to their cause. Promoting May as awareness month and hoping to help bring funding for research to find a cure immediately.
Playa Vista , CA Marissa Chavez
My grandma lost her fight on October 26, 2008 to a stage IV GBM. Fight for the cure!
Portola Valley, , CA Bret Bocook
You can get a logo from my website:
Redondo Beach, CA Todd Harris
I lost my mother on January 1, 2007 after an eighteen month battle against GBM. She was 63. I am dedicated to spreading awareness about this disease. Thank you for starting the cause!
Redwood City, CA Terry and Carol LeMar
Riverside, CA Tamara Castro
Sacramento, Ca Juana Rodriguez
San Diego, CA Kathleen Bell
I lost my 4-year old niece to an inoperable brainstem anaplastic astrocytoma. My son was diagnosed 5 years ago with a primitive neuroectodermal tumor (PNET) in his right frontal lobe.
San Francisco, CA Henry Liu
Thank you
San Luis Obispo, CA Ashley Cash
Santa Ana, CA Brittany Kuskie
Santa Barbara, CA Samantha McVee
My 6 month old Eliana Sofia was diagnoised last month with brian cancer. The dr's think is Ependymoma.
Santa Rosa, Ca Kate Burke
5 Year stage 4 GBM survivor!
Scappoose, CA Melissa Solomon
Sebastopol, CA Ria Lee
Sherman Oaks, CA Gianina Zeller
Stockton, CA Aimee Adair
Studio City, CA Carrie Skane
In honor of my mother, Charlotte, who was diagnosed with a Glioblastoma Multiforme brain tumor in April of 2009 and is still fighting the fight!
Thousand Oaks, CA Megan Donohue
I became aware of this organization through the American Idol website due to the contestant David Cook. He won the season and his fans are joining in the fight to raise awareness about brain cancer. David's brother is suffering from brain cancer.
Valley Glen, CA Ellen Jannol
mom to Joey- forever 18, got his wings 8/27/11 - gbm
Weaverville, CA Karen Carrington
Wofford Heights, CA Kelly Lehman
Woodland Hills, CA Gary Potikyan
carmichael, calif jeffrey oliver
I,am a GBM survivour 12 months &still fighting the good fight ! Jeffrey
, California Kevin Hughes
Clovis, California Barbara Luker
Laguna Niguel, California Brittany Luckman
My Grandpa, and hero, was diagnosed back in May 2012. I am now a fighter and speading awareness in order to help him and others.
San Diego, California Stephanie DiStefano
Accelerate Brain Cancer Cure (ABC2) is a venture philanthropy 501(c) (3) nonprofit organization that drives cutting-edge research and treatments for brain tumors. Through strategic partnerships with medical research centers, early-stage biotechnology companies and large multi-national pharmaceutical companies ABC2 has awarded more than $20 million in brain tumor research funding to highly qualified investigators and physician-scientists from 42 institutions and companies. For more information, please visit: We established an office in San Diego, CA in 2012 to be a part of the strong research, biotech and brain cancer community. We started Over the Edge for Brain Cancer in San Diego, CA in 2013 to raise critical funds for San Diego-based brain cancer research. We continue that event today and hope you will join us in finding a cure for brain cancer!
San Jose, California TRINITY PORTRUM
I had part of a brain tumor removed in feb. I will have more of the tumor removed in July! I think this is an amazing site! Let's keep the knowledge coming! ;) Trinity Ann Portrum
Thousand Oaks, california Michael Fairbanks
My wife has a brain tumor and it non operable, I want to run in the race with her. I printed out my form. She has terminal brain cancer.
Grand Junction , CO Carrie Stevens
West Haven, Connecticut Bill Heffron
Andover, CT Kim Lachut
I lost my dad to a brain tumor 6 years ago and have been hosting a fundraising walk once a year ever since. Through our Sharing Hope, Walk the Walk Talk the Talk we have managed to raise over $75000 for ABTA. This year's walk will be on Sunday June 28th. More information on our fundraiser can be found at
Enfield, CT Carina Shaw
I am the mother of a 2yo son with JPA they did a 98% resection 2 months ago and the 2% that was left has more than doubled in size. His tumor is now the size of a large olive and unable to be completely removed because it is against the optic ciasm and the left optical nerve. We have recently begun weekly Chemo treatment.
Uncasville, CT Rhonda DiMaggio
Middletown, DE Lulu Calbazana
My 3 year old was diagnosed on Black Friday 2008 with Medulloblastoma. She has endured surgery, 30 rounds of radiation, and 3 rounds of chemo so far. She is the toughest person I know even at 31 pounds.
Newark, De Raymond Baum
cape coral, fl jennifer radic
Deland, FL Jan Hevner
Eustis, Fl Lynn White
Green Cove Springs, Fl violet montgomery
My husband passed away in 2007 from a grade IV GBM brain tumor he was only 39. It is so important to make awareness about this terrible diease to try and find a cure so no one else has to suffer with this.
Indian Rocks Beach, FL Cathy Hall
Jacksonville, FL Donald Cooley
Lake Wales, FL Miranda Appleton
North Port, FL Edie Pavonarius
I am in no position to donate any money at this time (I am on SSD)...but I will raise awareness and wear my ribbon proudly. I was diagnosed a year ago with a brain tumor. At the time they said it was not cancerous and I am supposed to keep checking it evey 6 months, but I am scared as hell. Keep up the good work, and I will look for some good recipies.
Osprey, Fl Janis Hanson
Oviedo, FL Heather Lancaster
I just recently lost a dear friend of mine to a brain tumor. It has hit me really hard. And I would love to help raise awareness for this cause.
Panama city, fl shawn howard
My daughter was dx on 4/08 with a tumor in her Brain stem.
Port Orange, FL Terry Naszcyniec
Currently recovering from a successful Brain Tumor surgery (benign meningioma removed 11-26-08).
Riverview, FL Donna Hall
saint petersburg, FL BETH LUNSFORD
Tallahassee, Fl Cheryl Davis
Cooper City, Florida Rebeca Alberti
Hi, Thank you for putting this site together. I am trying to set up a walk in the Broward County, Florida area and look forward to getting additional information. Here's to finding a cure for brain cancer!!
Doral, Florida Patricia Arteaga
Gainesville, Florida Stephan Showstark
Jacksonville , Florida Shannon Bradley
Brunswick, GA Warren Merritt
Hi everyone, My name is Warren and I'd like to share some of my experience with GBM, with any one interested in hearing about it. Iwas diagnosed and had my first resection (surgery), June 6rh 2003. That tumor was about the size of a jumbo egg and located in my right parietal lobe. I started radiation about two weeks later after the effects of the glial wafers wore down . There is much more I'd like to say but I'm not sure if this is the correct forum? please let me know and I'llget it in for you. BTW I've had two recurances, used Temodar and accutane. and am now back on temodar. Ilike to joke that I live my life eight weeks at a time because that is the interval between my trips to the Mayo Clinic in Jacksonville, FL. I'm due again Friday! stay tuned and I'll update you later. provided I'm not notified that I'm in the wrong place Must go nod and get readyto go to Jax. God Bless you all, Warren
Grovetown, GA Lisa Stamper
I am an individual who is interested in using the Heroes of Hope motto and grey ribbon logo on T-Shirts to raise money for a friend with a cancerous brain tumor. From what I read on the About page and the collaboration agreement, we are free to do so. If I have misunderstood, please contact me. We do not want to infringe on copyright; we just want the best t-shirts possible to make money for our friend.
Reidsville, GA Richard Sessions
Have a parents with stage 4 glioblastoma.
Savannah, GA Barbara McQueeney
After all the publicity of pink ribbons for October, I was reminded of how I want to make Gray the new pink, and stumbled across your site! Hopefully together we can start a gray ribbon revolution!
Sugar Hill, GA Jeff Shekey
Acworth, Georgia Dawn Bailey
Atlanta, Georgia Christine Overrocker
Augusta, Georgia Katelyn Gibbs
My mother recently passed away just after Christmas of oligodendroglioma brain tumor(s). She battled this awful sickness for 13 years undergoing 2 surgeries, radiation, multiple chemotherapies and a hard struggle at the end. She was a miracle and the sweetest angel anyone had ever had the pleasure of meeting. Over 2thousand people came to her visitation and funeral. I just want to give back to what she fought and try and find a cure for all the innocent victims of this atrocious disease. It is such a gift to see so many great people fighting for a cure. " There is nothing stronger than the heart of a volunteer." Thank you all!
Augusta, Georgia David Wehner
Hortense, Georgia Hannah Jones
Lawrenceville, Georgia Annette Tucker
Talking Rock, Georgia Laura Rosenberger
In memory of my father, John Rosenberger...lost to GBM September 2, 1993.
Mililani, Hawaii Amber Fleming
Kihei, HI Anthony Santoro
My friend Niki Perry said your organization needed a Hawaii member, so here I am!
LeClaire, IA Joan Huhn
I am in the middle of the country overlooking the Mississippi. My son, then 26, was diagnosed with a brain tumor a year ago last Thanksgiving.
Maquoketa, IA Tabitha Yarolim
Boise, ID Brenda Zantjer
Caldwell, ID Andrea Woodyard
Eagle, ID Kali Carringer
On July 2, 2010, a large egg-sized meningioma was found via MRI pressing against my right frontal lobe as an incidental finding - I was having hearing issues and they were looking for a post-cochlear lesion on my left side. Luckily I had no symptoms related to the tumor and postponed my surgery until September 22, 2010. My excellent surgeon, Dr Mike Hajjar, got me back on my feet and back to work full-time in just 6 weeks! So far, so MRI in September 2011 will tell more.
Tetonia, id Robin Workman
Chicago, Il Nicole Farley
Chicago, IL Joshua Foster
1st year of survivorship after 18 month fight with astrocytoma
DES PLAINES, IL Amber Moosvi
Glencoe, IL Linda Schneider-Singer
My brother, Rick, has a GBM and I am thrilled about a Grey Ribbon Awareness crusade.
Glendale Heights, IL Russell W. Johnson
Feb. 5th, 2008 my life changed as I had a tennis ball sized Glioblastoma Multiforme laced tumor removed from the right temporal lobe of my brain.I have receieved an overwhelming amount of prayer and when coupled with the best possible meducal care available the remainder of the tumor(10% of tennis ball) is now gone and there is no visible evidence of cancer in my brain after my first MRI. Temodar and Avastin will continue as we need to eradicate any lingering and lurking cancer cells! I am part of the new and positive Brain Cancer statistics! Things are changing for the better in the world of Brain Cancer! I am so thankful to God and for what is currently available to treat Brain Cancer at this time! Good results are possible today and will be the norm in the future! Believe it! Sincerely, Russell W. Johnson
Hanover Park, IL Rebecca DeAngelo
Libertyville, IL Mary Prochotsky
Mendota, IL Nancy Dessing
Metropolis, IL Kyla Parker
My husband was diagnosed in December 2007 with GBM. He had a stroke in August with resection of the clot done. In December, a growth appeared on the MRI and resection of that was done. After 2 cranies, radiation and Temodar (still on Temodar 5 days/month) his tumor is shrinking. I am so glad to find this website. I want to do something in our small town to raise awareness of this horrible disease. I will be looking into this and will let you know when I have something planned. We can beat this!
Oak Park, iL Ronald Gerona
Huntley, Illinois Doug Howison
Peoria, ILLINOIS Ruth Tinkham
I was diagnosed with a right Cerebellopontine Angle Meningioma in 2005, will celebrate my 4th year anniversary as a Survivor in June. I had 28 treatments of radiation, which has the tumor as having no significant growth now, but with some deficits, cognitive and otherwise. I did however, lose my Uncle to brain cancer in 2006, and an Auntie to a brain tumor years ago. Tumor will not be taken out due to location. Let's do this, let's figure out a way to bring brain tumor awareness to the front of the class, we need funding and research.
Carmel, IN Lindsey Hyde
Survivor! :)
Carmel, IN Ron White
We are interested in developing awareness, support, and funding for research.
Dillsboro, IN Carrie McCune
Griffith, IN Regina Mayerhofer
jeffersonville, in Regina Layton
Lebanon, IN Samantha Walls
Linton, IN Sherri Wilson
Mishawka, IN Catherine Stutz
Warsaw, IN Diana Miller
My daughter Karla lost a courageous 17 month battle with gbm iv, she was beautiful, vibrant, the mother of 2 little ones, had a joyful soul and a kind heart and an a positive personality and outlook on life. She would often say to me: Mom, I have cancer but cancer doesn't have me! She lived life on her terms and was a fabulous and loving wife, mother, daughter, sister, granddaughter, niece, aunt, and best bud in the whole wide world! We miss her with each passing moment. This year marks the 6th anniversary of her passing. It's like yesterday that she left us. Life has moved on, she would want us to, and we remember her in life, in love, and in spirit.
Dubuque, Iowa Joan Boughton
Dubuque, Iowa Joan Boughton
Argonia, Kansas Donna Garrett
My nephew Mason is 15 months old and has been diagnosed with "Grade III Anaplastic Astrocytoma, a malignant brain cancer, in the third ventricle of his brain. A craniotomy was performed on December 10, 2011 to biopsy the tumor, and a VP shunt was placed on the left side of his head to relieve the pressure from the hydrocephalus (fluid on the brain) caused by the tumor." (as stated by Annette). Annette and Mark met with a pediatric oncologist on December 29th and were told that they could not remove any more of the tumor because of it's location, that Mason was too young for radiation, and chemo would be their only option. Annette got in contact with St. Jude and got a call from the coordinator on December 30th saying that one of their neurosurgeons believed he could remove the rest of the tumor. The surgeon wants to consult with another surgeon over the weekend and they will call Annette Tuesday morning with the final decision. We are PRAYING that they will be Memphis bound by the end of the week. My older sister Kris & I create Fighting For Mason on Facebook just to garner support, but it has ballooned into so much more. We have begun fund raising and more people are willing to help that I could ever have imagined. Its WONDERFUL!
Harper, Kansas Andrea Slaughter
Bowling Green, Kentucky Misty Forshee
St. Helens, Kentucky Vanda Williams
Kiowa, KS Teresa MacKinney
Lawrence, KS Mary Pat Lange, M.D.
Versailles, KY Joseph West
Baton Rouge, La Susan Amato
Just found out about this and excited to join. My son has a optic glioma. Treated at St. Jude! In remission now. Thanks for bringing awareness!!
DenhamSprings, la Eddie Onnebane
Mandeville, LA Kathleen Knight
I have had meningiomas and posterior fossa craniotomies to remove them three times: '86, '90, and '96; the -- first one was Grade II -- Atypical; the second and third were Grade III -- Malignant. I had 25 radiation treatments in 1997 for a small, inoperable part of tumor #3 that was in the brainstem area. In 2006, I had to have surgery to implant a ventriculo-peritoneal shunt for hydrocephalus. The hydrocephalus was blamed on the scar tissue from the three craniotomies and the radiation. I've also had four other kinds of cancer besides the malignant meningioma. I would ask anyone who wants to call me to call between 1:00 p.m. and 10:00 p.m. Central Time, USA.
Maurepas, Louisiana Lacy Bihm-Cornett
I heard about you on Myspace. They are spreading awareness. I think it is a real good think that people know about this. My aunt, grandfather and my granmother all died of brain tumors. My gradmother battled cancer for years and before we could fight it we find out she had a brain tumor. Keep up the good work, making people aware of this. Thanks
Bellingham, Ma William Fox
Boston, MA Katie Mandell
Dear Friends, My daughter, Emily, turned two this month, which is truly a miracle. Last March she was diagnosed with a very rare and difficult to treat brain tumor called, Atypical Teratoid Rhabdoid Tumor. We were told there was nothing that could be done and to make her as comfortable as possible, but she would only have about another month to live. We were devastated but we had to try something. After a lot of research, we made our way up to the Dana-Farber Cancer Institute, partly because of all the research they have conducted on this tumor type. The Neuro-Oncology team at Dana-Farber has given us hope and almost another whole year with our little girl. While more children have survived Atypical Teratoid Rhabdoid Tumor in the last five years as compared to pre-2002, this disease remains a tremendous challenge for our families and oncologists. Much has been learned about the underlying cause of ATRT; the genetic mutations involved have been identified. But the overall survival from this deadly cancer remains low, too low. The small number of children diagnosed yearly around the world make it difficult for doctors to conclude definitively which portions of treatment actually work. Like other cancers, it will be through scientific breakthroughs from research laboratories that will lead to new treatment approaches. Only through collaborations between the laboratory scientists and the clinical doctors can we learn from each, leading sooner to a cure. In March of 2009, the team at Dana-Farber Cancer Institute, in collaboration with their European colleagues, along with their laboratory counterparts, will be hosting an international joint consensus meeting, CNS Rhabdoid Tumors: Integrating Biologic Insights with Clinical Success, to exchange ideas and the latest information on this tumor, working towards understanding, building and planning future therapy strategies. We hope that you will join us by donating to their effort as they work towards a cure for this devastating tumor that has affected us in so many ways. If you are able to contribute, or would like more information, please contact me or my sister at the below information. Thank you for taking time to read this and please feel free to pass this information along to others that might be interested. Sincerely, Katie, Brian, and Emily Mandell Katie Mandell 703-727-1606 Christie Bell 703-727-3394
braintree, MA Maria McSweeney
Franklin, MA Christine Soderlund
Franklin, MA Steven Soderlund
Hanover, Ma The Kelly Family
Leominster, MA Cathy Perkins
Mattapan , MA Linette Laureano
pittsfield, MA Abbie Shettles
This is my fiance _Mark. He is 17 months out with no signs of the Tumor. We are keeping our foot on the neck of this nasty snake of a GBM and will fight it to the end.
Baltimore, Maryland Sarah McGeehan
Annapolis, MD Denise Benyak
Columbia, MD Alan Kaminsky
Earleille, MD Victoria Barlow
Edgewater, MD Patty Ernest
I am an eight year survivor!
Gwynn Oak, MD Nicole Lorsong
Trappe, Md Lisa Stofer
My mother was diagnosed with a high grade glioma this July (2011). Had surgery and has started chemotherapy and radiation.
South Portland, ME Claire Hammond
My son Craig Hammond, died of a glioblastoma multiforme brain tumor on October 2, 2006 at the age of 42. He left a wife and 3 obys, who were 8, 10 and 14 at the time. We are hosting an event to assist others battling this illness.
Westbrook, ME Kimberly Irish-Tarbox
I am a brain tumor survivor/thriver. I was diagnosed in 2005, had a craniectomy in 2008, and had radiation in 2011. I have written a book and once it starts selling proceeds will go towards brain tumor research. I am still battling these tumors but I will thrive despite them.
Battle Creek, MI Virginia Donahue
I am joining in memory of my beautiful and deeply loved daughter, Christine, who lost her battle with an Anaplastic Astrocytoma in 2005 at the age of 21.
Dowagiac, Mi Chandra Carpenter
Eaton Rapids, MI Stephanie Leyrer
Eaton Rapids, MI Jeffrey, Sr Rochester, CPA
My son, Jeffrey, Jr, was diagnosed with GBM in October, 2007, with surgical removal on 10/31/07. He was 17 at the time of diagnosis and surgery. He has completed radiation with concurrent Temodar, and now has done 5 rounds of 5/23 Temodar. He completed his senior year of high school last week and continued playing baseball. He plans to be enrolled in college this fall and possibly continuing his baseball career. He is fighting hard and has been a tremendous inspiration to many people. Thank you so much for this organization. We look forward to being part of the growth. Hopefully soon, a cure for this disease will be found.
Flint, MI Linda Pohly
Lansing, MI Kris Truman
Morrice, MI Nikki Bindschatel
Novi, MI Jennifer Bishop
Saginaw, MI Maria Rosales
Sterling Heights, MI Wiliam Konrad
Sterling Heights, MI Nancy Smith
Warren, MI Nicole Zapoli
Flint, Michigan Brenda Jacob
Newport, Michigan Frances Walk
Saint Clair Shores, Michigan Elain Nelson-Osborne
Stanwood, Michigan Jessica Eluskie
Ypsilanti , Michigan Tisha Swinea
I had just found out I have brain tumor was looking up websites
Bethel, Minnesota Marty Super
Brandon, Mississippi Paige Hunter
My mother was diagonosed with Glioblastoma Multiforme June 2005. She lost her fight on January 1, 2007 at the young age of 63. She was a fighter and fought to the better end. We miss her! I want to be able to get the word out on Brain Cancer!! and hopefully we can help find a cure, so no more lives will be taken from the dreaded disease. I also want to help in any way I can! Please let me know what I can do. Paige Hunter 601 829 2492 Brandon, MS
Excelsior Springs, missouri Jennifer Sapp
Independence, Missouri Kimberly Ebersold
Living with a brain tumor!
Nixa, missouri Mark McCann
cottage grove , mn theresa mullen-dufour
My 16 year old son was dignosed with a brain tumer on april 27 medulomablastoma
minneapolis, mn bailey setzke
Minneapolis, MN Sarah Jones
Minnetonka, MN Tom Kroeck
St Paul , MN Tammy Greschner
I am joining as my boyfriend of 12 years just passed away from GBM IV nine months after diagnosed. It was awful to see this 51 year old man who could fix anything and loved the outdoors, especially ice fishing in northern MN, become so helpless so fast and lose all his independence. This journey was not at all positive and more information needs to get out there, especially to the 'regular' doctors who ignored us so much here, it seemed that since Dave had brain cancer, well then not much we can do to help his other issues as he is going to die anyways. Also people need to know that BT is so much more common than they think. I look back and until Dave was diagnosed, I did not even know what BT was and it was like, what? Anyhow, sorry to be so long, still hurts alot to talk about. Thanks
White Bear Lake, MN Ben Ursel
As a healthy, 32yr old man, I was absolutely shocked to be diagnosed with a Grade 3 Oligo Astrocytoma. We need to have more research to find the cause for why brain tumors are increasing in our society and find ways to prevent and cure them.
Aurora, MO Rachel Cody
Thank you for all you do. Please send me any materiels you can and I will begin spreading awareness as well.
6 YEAR SURVIVOR! JohnDiagnosed 8/12/01 - gbm in right parietal lobeSurgery 8/15/01Radiation with Temodar 9/01 - 11/01Temodar and Accutane - 11/01 - 11/05Temodar only 11/05 - 4/06NO SIGN OF TUMOR RECURRENCE! - MRIs every 4 months Loss of left-center peripheral vision, sensory feeling in left leg, arm, hand and foot. Worked Full time until April 2008. Have Two wonderful daughters age 10 /13. I am fortunate to have a loving, caring wife, who is on the board of the American Brain Tumor Association ABTA.
Excelsior Springs , MO Kellie Boone
Jefferson City, MO Danielle Minshall
In memory of Daniel L. Minshall Feb. 1952- April 1997. My Father My Hero My Friend
Jefferson City, MO Tom Sadowski
I am a GBM survivor - 10 years on April 1 - no foolin'!
Kansas City, MO Jessica McKinney
Kansas City, mo J Bryce Morris
Kansas City, , MO Rachel Chrisman
I've joined in honor and in memory of my Mom, Judy Chrisman.
Maryland Heights, MO Lauren Majerle
St Charles, MO Jennifer Gutierrez
, MS Shelley Robinson
My husband was diagnosed with an Anaplastic Astrocytoma Grade III with GBM characteristics in April of 2007. He had been basically okay until exactly almost a year to the day this year, 2008, when he had seizures and such that landed him in the hospital for 5 days. As of right now, he can barely walk, has speech problems, etc. We ARE fighting with everything we're worth to beat this nasty disease. *I* have been trying to promote BT Awareness for months now, even emailing Oprah and Nascar hoping toget some response from them. The world is very much unaware of the extent of the problem brain tumors are in this world. Anything that can help spread the word so that the public is aware is wonderful! We need more education, more research, more funding, and faster FDA approval for potentially life-saving treatments. There has to be some key to these nasty tumors. People say maybe cell phones but I'm not sure about that. My aunt died last year from a GBM. She had a cell phone that she very rarely used so???? Yes, my husband uses his cell phone but not to excess. I think his was caused by a chemical at his workplace of 20+ years. Anyway, I pray somebody somewhere can come up with some answers to this and SOON! I do all I can to help spread the word but I am only one person in a small corner of the world. I have created car magnets for our vehicles as well as relatives' vehicles. Again, only in our little corner of the world are they seen. Anybody who reads this, please pray for all the BT victims in this world. Please pray for the doctors who are trying to find answers. Please pray for the people who make the rules and decisions and such in this world to do the right thing for once and open up more funding, etc. to help find the cause and a cure for this nasty disease. Please pray. It's the only hope we have...
Brandon, MS Rebecca Blake
Coffeeville, MS Kathryn Sparks
My niece Deanna Howell had a benign brain tumor as a child. She is now 28 and has stage 2 and stage 3 tumors. I am wanting to support the cause.
Fulton, MS Angela Bryowsky
Great Falls, MT Katie Vaughan
Missoula, MT Kayla Syverson
Trinity, N.C. Holley O'Briant
Lenoir, NC Karen Laws
Mebane, NC Conchita Terry McIver
nags head, nc Cindy Moore
Raleigh, NC Katie Reeves
Raleigh, NC Kelley Sharp
My 7 yr old son was diagnosed Jan 20, 2011 with a GBM and had successful surgery to remove it, received radiation, chemotherapy, took a 6 week break and is currently receiving chemotherapy every other week for the next year with MRI scans every 8 wks. We are being treated at Duke University Children's Hospital in Durham, NC and they are awesome!!! We had an MRI yesterday and by the grace of God it was clear!! He has ONLY had clear MRI's since his initial diagnosis and I pray that continues for another 100 years!!! We HAVE TO FIND A CURE FOR THIS!!!! We will live the rest of our lives MRI to MRI and no one should have to deal with this, especially a child!!! Let's find a cure and God Bless Everyone who is dealing with a brain tumor as well as researching for the cure. God be with you all. KS in Raleigh, NC
Wake Forest, NC AJs Dad
This is a grassroots campaign to raise awareness of childhood cancer. The goal of the petition is to get time on a TV newsmag like 20/20 or 60 min, have Dr and kids and moms and dad tell their stories. And create and promote a book about the kids and how they impacted those around them as they fought/fight cancer.
Wilmington, NC Maureen Tiedeman
Grand Forks, ND Gene and Judy Vatnsdal
In Memory of Les!
Elkhorn, Ne Monica Waggoner
I am Nate's Mom. Nate is 16 years old and was dx 5/8/08 with a inoperable tumor in his brain stem. He is taking treatment every 2 weeks and doing well. We want to learn about fundraising and things we can do to aid in research for this awful disease.
omaha, ne michele pearrow
omaha, ne jeff wilds
omaha, ne vicki wilds
las vegas, Nevada shawn savage
I am a Gleo-Blastoma Brain cancer survivor have had a total of 5 craniotomies from dec.6th 2000-oct..2004. My 1st. Diagnosis I was given 3mos. of life that was 13yrs. 4mos. & 27 days ago. I went through a Gene Therapy Trial study program that Saved my life & at the same time the procedure that was preformed on me it was Accepted into a Standardized GBM Brain Cancer procedure for the treatment & "CURE" forGBM. This is very tough to do because when you have such a "TRAUMATIC" event happen in your life & you are searching the true purpose of your Survival when so many others have gone before you,to sum this up.Why did I survive? Respond to me & I will open a treasure trove of experiences & knowledge to hopefully help your Cause.Not many long term Brain Cancer survivors like to Rekindle the past so please show your intent & I just may Surprise you
Aberdeen, New Jersey Alecia Krampel
Rio Rancho, New Mexico Luis I del Valle
Santa Fe , New Mexico Nancy Allen
East Amherst, New York Kim Axtell
keuka park, New York Lacey Lown
parish, New York jennifer jackson
West Winfield, New York Deborah bailey
West Winfield, New York Ronald Bailey
Hampton, NH William Burns
Loudon, NH Debra Zarges
Haddon Heights, NJ Dara Giannotti
My daughter is 5 has Medulloblastoma, she was 1st diagnosed at 22 months old in Apr 2006...she had it resected, went through headstart II protocol and a stem cell rescue,,,,in Apr 2009 it returned in a new location, this time she had resection surgery again as well as chemo and Proton radiaion at UF Proton in jacksonville Fl and is currently on low dose oral chemo.....I would like to help in the fight to end brain tumors as well as raise awareness for the need for research funding.I am a single mom because I lost my husband to esophageal cancer in May 2006 a month after our daughter was diagnosed with her tumor so having a child in treatment and another child who is 8 doesnt leave me as much time to help as i would like but let me know how I can help through emails, mailings,pins etc.thank you
Hamilton, NJ Brianna Scott
Hamilton, NJ Kathleen Bonner
We have another webiste that I would like to add:
Middletown, NJ Caren Dandreo